Living with PD
CURRENT STATE: You are diagnosed with Parkinson Disease (PD), starting, considering or receiving treatment, and:
have questions. Family and caregivers have questions too
see your neurologist or PD specialist every 3-6 months
receive bits and pieces of info from PD websites, support groups and foundations
THE CHALLENGE: Medications and advanced therapies significantly help, but each person with PD is unique in their concerns, situations, and problems. Ideally requires specialized and comprehensive care.
One size does not fit all!
There are specialized neurologists, Movement Disorders specialists, trained to tackle the complexity of each person, effectively providing them medications and/or advanced therapies.
THE PROBLEM: Few of them, many don’t have access.
THE OTHER PROBLEM: The current state of medicine allows most doctors very limited time to interact, consider and address the more complex problems that may arise with PD, like sleep, memory, cardiac and blood pressure problems.
THE RESULT: Care not integrated, errors occur, health problems not addressed or not recognized to be PD-related.
WE HAVE A SOLUTION!
OUR VISION FOR CARE:
Your PD doctor’s office is a gym/fitness center.
It’s a clean, comfortable place where you can bring a family member or caregiver.
PD doctor briefly evaluates you 1-2 times per month, addressing current concerns, your condition and fitness goals to prepare you for an exercise class or training.
Ready, set, go! Don’t have to think too much! The medical team guides you in the gym! You just come in comfortable clothes to work hard and have fun!
If you develop any concerning symptoms while exercising, including PD-related problems (wearing off!), you receive immediate medical attention.
While you exercise, PD doctor is monitoring, guiding professional trainers to safely challenge you in PD-related difficulties, especially challenging BALANCE!
Result: PD doctor makes better choices for your care, adjust medications if necessary, based on routine training and monitoring, and you exercise routinely, taking control of your care!
It’s free, but you are given the option to participate in clinical research and/or become a community advocate so all people with PD can optimize their care.